The TUF Family Network is for the immediate families of patients diagnosed with Jamuar syndrome. Members will hear directly about opportunities to participate in research and
share their voice.
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Every member matters. The bigger our network is, the better we will understand who is affected across the world and how, which is critical to tailoring our efforts to find better treatments for everyone with Jamuar syndrome.
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Your contact information will not be shared outside our organization without express consent.
Thank you for enrolling! You'll be hearing from us soon. You can also contact us at contact@ugdh.org.