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Join the TUF Family Network.

The TUF Family Network is for the immediate families of patients diagnosed with Jamuar syndrome. Members will hear directly about opportunities to participate in research and

share their voice.

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Every member matters. The bigger our network is, the better we will understand who is affected across the world and how, which is critical to tailoring our efforts to find better treatments for everyone with Jamuar syndrome.

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Your contact information will not be shared outside our organization without express consent.

Thank you for enrolling! You'll be hearing from us soon. You can also contact us at contact@ugdh.org.

P.O. Box 670
Shepherdstown, WV 25443
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EIN: 92-1887617

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The UGDH Foundation is a public charity, exempt from federal income tax as an organization, described in Section 501(c)(3) of the Internal Revenue Code. All contributions to the organization are tax-deductible to the fullest extent of the law.

IRS Letter of Determination

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© 2024 The UGDH Foundation

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